Georgina Pearce, right, and her sister, Jessica, 9, in her new bedroom which was built onto her parents’ home. (Picture by Steve Sarre, 0929050)

Le Murier pupil Georgina Pearce, 13, began suffering from memory problems and was later diagnosed with Niemann-Pick Disease Type C, a rare and degenerative neurological condition.

Georgina’s parents, Ian and Tania, were determined their daughter would be cared for at home as her illness progressed – but that meant big changes.

Plans were made to create a wing on the family home at Cobo for Georgina’s new purpose-built bedroom and wetroom, at an estimated cost of around £100,000.

A charity, Georgina’s Gang, was set up and islanders took the family’s plight to their hearts and began fund-raising to make the Pearces’ dream a reality.

‘Our costs are still going up and income going down, but our main concern now is spending time with Georgina,’ said Mrs Pearce, who has given up her job to care for her daughter full-time.

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