Georgina’s sense of fun keeps us going, say the Pearce family

Monday 28th February 2011, 2:29PM GMT.

Georgina Pearce, centre, with 10-year-old sister Jessica, left, parents Tania and Ian and, front right, Donna Allen, fund-raising co-ordinator for Georgina’s Gang. (Picture by Peter Frankland, 1099638)

THE family of a terminally ill teenager said her sense of fun helps them get through each day.

Georgina Pearce, now 14, was diagnosed with Niemann-Pick Disease Type C, a rare and fatal genetic disease, in 2008.

Georgina’s parents, Ian and Tania, said her health has declined, but that was not unexpected.

‘The last couple of months have been really hard as they have been a little glimpse into the future. At present we cling onto Georgina’s happiness and I can’t imagine what it will be like when she can’t express herself or forgets us,’ said Mrs Pearce.

She said there was so much that couldn’t be put into words.